About us

Obviously, we exist because Addison’s disease exists, but the following should be helpful in understanding how the Association works and what we do:

Our goals:

  1. To raise the awareness of the Medical Profession, so that the disease is considered when difficult cases present.
  2. To make the general public aware of Addison's disease
  3. Supply up to date information to people with Addison's disease
  4. Supply a caring network to give support for people with Addison's disease.

We are non-profit organization funded by membership fees and donations. We do not receive any government funding.

In 1998 we became an Association and now have representatives in most States and Territories.

The Committee:
The current committee consists of President, Vice-President, Secretary, Treasurer, Newsletter Editor, Webmaster, Medical Adviser and Promotions officer. The occupants of these positions are volunteers and are elected at the Annual General Meeting.

The current committee members are:

President:              Joanne Edson
Vice President:     VACANT
Secretary:             Donna Hensley
Treasurer:            VACANT
Editor:                   Kristy Dawson
Webmaster:          Alison Butcher

Medical Adviser: Associate Professor, David Torpy

Following are some of our achievements and activities since 1995, when the support group was first formed:

  • Membership has grown from 3 to more than 300, and contact has been made with a further 200 Addisonians.
  • We put our members in contact with other Addisonians, and exchange Newsletters with similar overseas organizations.
  • We communicate with Government departments, drug companies, specialists and various medical organizations
  • We hold memberships of several Self Help organizations around Australia, and maintain updated information on web sites which are accessed by the Medical Profession.
  • State and Territory representatives organize meetings from time to time and arrange activities which give the local Addisonians the opportunity to get to know others.
  • Our telephone "Help-line" service is used extensively by members, their families and friends.
    We maintain an informative website, updated from time to time.

We publish a bi-monthly newsletter in which Case Histories and new information are featured. It includes a Q. and A. section where members' questions are answered by a leading Endocrinologist and a Pharmacist who have offered their services to the Association. We also report on the work the association has been doing to raise awareness and improve quality of life for Addisonians.

Selected newsletters are displayed on this site. (go to Newsletters section)